Friday, January 13, 2012

In Broad Daylight

       
A Talk Delivered at the Memorial of Cynthia K Harris.

               After I got the terrible news about the passing of my beloved friend and sister, Cyndi, my brother called me. During that late night conversation, he asked me if I would write something to share at Cyndi’s memorial. Of course, I said yes. And from then until this morning, I’ve been asking Cyndi to send me the right words. How can I describe Cyndi to you so we can recall her completely? How do you describe a ray of light? You can’t see it except that its brightness may cause shadows to be cast by the things that are bathed by it. You can’t see it except if it passes through a leaden crystal and breaks into prisms of color that will dance upon the floor or ceiling. If a ray of light shines at you too directly, it will blind you. In winter times, it can make the snow covered ground sparkle as if covered with jewels. In the summer, it is the warmth upon our skin that makes us want to work in the garden, sun ourselves on the beautiful ocean shores, or take our dog for a walk in the park.

               I’ve been asking people about Cyndi over these last few days. What do you remember about her? Tell me a story. Her mother, Jeanne Bugay said “she was all sunshine and happiness.” When I talked to Summer about it, she said, “my mother had a way of finding the bright side of anything.” In the early morning hours, after her death, her son Stuart sent her one final text saying, “You are my world.”

               Spending these few days with my brother and Cyndi’s family, my siblings and I have tried to help by picking up around the house, being there to listen to Jim and the kids, and to offer whatever tiny bit of comfort we can in the wake of this unexpected loss. I’m a very practical person and thinking about Jim’s life going forward, I said to him, “she was your bookkeeper, wasn’t she, Jim?” He was quiet for a moment and turned to me saying, “She was my everything.”

               Cyndi was a woman of great spirituality, but her faith and practice of it was something she held as sacred and private. I know that her beliefs were a source of great comfort and strength to her through not only the illness she battled but also through carefree times. What I can say about this is that Cyndi believed in working from intention; she believed that with enough faith and sheer will blessings would come to her and they did.

               Cyndi did not believe in being passive, as we all learned watching her live with the devastating implications of liver disease. When I think of Cyndi in this battle, I think of the beautiful Goddess Athena on a white steed. Cyndi never seemed sick and she never said anything but that she was feeling great. She never looked anything but lovely. In fact, as the years flew by, she grew lovelier. She became a student of her illness in every way. She befriended and recruited all the doctors, nurses, technicians and personnel at Montefiore and Presbyterian Hospitals and of the Starzl Transplant Center into her army against this brutal disease. How could she know she would be ambushed? We all believed, as Cyndi did, that she was going to win this battle.

               In the winter, the earth rolls away from the sun a bit and some of us grow sad and cold. We long for spring and warmer times, but we go on because we know those times will return. Like the sun each morning, each spring we know that Cyndi too will return to us and that one day we will all be reunited in great celebration.

               Back home in Massachusetts these past few months, for some reason, I’d taken to watching a television program called “I Survived Death & Beyond.” In this program, survivors relate personal stories wherein they experienced clinical death and returned to the living. Their stories, though differing, share one common theme: that is they each experienced awe when they encountered the indescribable and overwhelming presence of a loving being or form of light. Most of these survivors did not want to return to their physical bodies, as they had never felt so completely loved and at peace. I believe this. I think you do as well. I believe this is the very light that illuminated Cyndi throughout her amazing life. I also believe she was greeted by this light, and by her loved ones who were there to greet her - Sean, Jim’s brother, Bill, our father Stuart, and especially Danna. Cyndi loves all of us - specially her blessed little family Jim, Stu and Sum. But when she transitioned to the other side and was freed from the heavy burden that her earthly body had become, she chose the light and the light chose her. I believe she wants us to know that she is with us, now and always.

               Jim and I talked on Thursday, when I first arrived, about how the kids are about the same ages that he and I and Jane and Rick and Bill were when our father died. So, we both felt we understood how sad they are feeling. The loss of my father was like the death of a superhero to me, and I know Sum and Stu feel that way about their mom. As Stu said, “She is his world.” I also remember in the years following my father’s death hearing other people, who perhaps were not as blessed as we were, talk about their parents. I thought to myself, I had more of a father in 19 years than most people have in a lifetime. Well, I want to share with you that Stuart and Summer Harris had abundant blessings in the gift of their mother, even in the very short time that they had her. And little AJ and Nico Ackerman along with their older siblings, Autumn and Dylan, our beloved Sean’s children, had an amazing blessing in their father in a short 6 and 11 years. Cyndi Siegert Harris is form of light, as are Stuart Marvin Harris and Sean Michael Ackerman. I know all of us feel sorrow for Summer and Stu, but in ways it might make more sense to wish that all children could have such an amazing parent.

               Cyndi Harris was a fierce lioness when it came to her children. Cyndi and I rarely had a cross word between us unless it came to some misunderstanding about our children. In Cyndi’s view, her children could do no wrong and anyone who hurt them in any way, real or imagined, intended or accidental, would have, pardon the expression, hell to pay. The other night I asked Jim’s friend, Tony Butera, to tell me his Cyndi story. He said, “All I can remember is when I first knew Jim, Cyndi didn’t like me. She knew I was a man about town and was afraid I would be a bad influence on Jim.” One night Cyndi and Tony found themselves alone together - all the tough questions were addressed, that was Cyndi - she didn’t mince words. That night, Cyndi realized that Tony was as devoted to her and her children as he was to Jim and since then Tony developed a strong bond with Cyndi and the children, in addition to Jim.

               Over the years, Jim and Cyndi have always shared the stories of their travels and adventures together. Among them were stories about their trips to New Orleans for New Year’s Eve to spend time with Cyndi’s best girl-friend, Karen, and her husband, Pete. The two couples grew incredibly close, and Pete, who was unable to be here today, often demonstrated his outrageous sense of humor and teased Cyndi about everything. Jim told me he called her “liverwurst” but more often he called her by another nickname, “In Broad Daylight” you can try to get the details of the reason behind that name from my brother. It was when Jim shared that nickname with me when I began to see the pattern of what it was that Cyndi gave to others - there again was light. This is what Cyndi was guiding me to share today.

It was Jeanne Bugay, Cyndi’s mother, who told me that Cyndi was a ray of sunshine. She also told me in her reckoning with this terrible loss, that none of us can understand what it is like to lose a child. My grandmother told me the same thing after my father’s death, “You can’t imagine the pain of bringing a child into this world and watching him leave it.” No, we cannot imagine this. This is each parent’s worst nightmare. All of our love and support goes to Jean Bugay and Dan Siegert at their unspeakable loss, now and going forward. 

               And more mirrors than this exist between Jim and Cyndi’s families as Cyndi is the older sister of her three brothers, Dusty, Jeffrey and Mick, who shared her birthday. Jim lost his oldest brother a few years back, our brother Bill, who was our guide through so many trials over the years, as I know Cyndi was to her brothers. They too will need our love and compassion over the coming months and years, as they face the empty space left by their beloved sister. I know Cyndi was a great support and comfort to Jim when he lost his brother, as she was to my sister Jane, staying by her side, as together they made arrangements for the burial of my mother.

               Cyndi Harris worked with intention and made magic. You were blessed if you got to sit at her dinner table, as she could scrape up a feast with slim pickings from her pantry. In her kitchen, there are stacks and rows of every spice you can imagine. As a seamstress, Cyndi makes me think of the magical fairy godmother in Cinderella with her enchanted wand. Bing! A Halloween costume for Summer. Abracadabra some beautiful drapes for the dining room! Poof! Your blue jeans are hemmed. Ashley, Danny, Maggie, Riley, Jeffrey, and Max, I want you to know that your aunt was something of an alchemist. As I do all of the nieces and nephews on Jim’s side of the family. If you had a sore on your finger, she could make the perfect tincture to heal it. If your heart was broken, she would slip you a piece of rose quartz to heal it. I’m sorry she won’t be here for you, kids, as you face these things in your life. But be heartened: you have an angel of light, who will always be watching over you. Don’t ever doubt it. Cyndi planted a lemon seed and grew a lemon tree that bore fruit. Who does that? That, my friends and family is magic.

               How can you see a ray of light? As I said, you can see it in the beautiful prisms that break through a crystal hanging in a sunny window. You can feel its warmth when you step from the shade into the light. I could keep you here all afternoon describing the ways in which Cyndi manifest light in her life, and how she gravitated toward the light, from her love of the sunny beaches of the eastern shore to the yellow buds of roses or ranunculus.  Yet, one of the things Cyndi told Jim is that she really didn’t want to be in a funeral home - that’s why we have only gathered here today. Summer told me, “Aunt Meg, she didn’t want us to cry, she wanted us to celebrate.”

               And so, after we honor this sister, this wife, this mother, this daughter, this friend, here and with solemnity, let us leave here together and go to Cyndi’s home let it be you who tell Stuart and Summer and Jim your stories of the sunlight that is Cyndi Harris.

Let us go and celebrate her life. Let us do so in with joy and “in broad daylight.”

Thursday, August 04, 2011

Don't Shoot! We're Coming Down!

On Sunday, after a somewhat contentious day texting with my kids, wherein communication was going awry and problems were not being solved. I came back to the cottage with my husband for some quiet time. Shortly after arriving here, there was a very loud shotgun blast followed by three or four more. It sounded to me like a cannon and turned out to be the guest of my new neighbor shooting rounds into the opposite bank of the creek.


Already testy, each of the rounds got deeper under my skin until I was compelled out of the back door and two doors down to Phil's place. All of the day’s aggravation wound up and let loose onto these relative strangers as I began yelling over the latest blast, "Okay, now you’re fucking with my quiet enjoyment!" I also said some other choice words, The response I received from Phil's girlfriend Jen, who I'd not yet been introduced to, was, “You could have asked nicer.”

"You're right," I answered, embarrassed (to put it mildly). I added some additional words of contrition and then made my way back to my cottage.

I was so mad at myself for losing my temper; I carried that feeling around like a rock for two days, until I saw Phil again and was able to apologize further. But, I can't unshoot that gun now.

A few summers back my husband and I gained a reputation for being anti-gun activists because we'd proposed a rule wherein campers would only discharge their guns on their private weeks but would refrain from doing so on weekends when there was a great deal of drinking going on, children running about and many more people around. This prompted another member to write a twenty page diatribe about us and how we'd gotten the language for our "manifesto" from an anti-gun website. I can't tell you how absurd this was to us. First of all I am not an activist anything, oh I did attend “The Rally to Restore Sanity/and or Fear,” if that counts. And I’m opinionated and politically informed and a flaming Liberal. But that's the extent of me being "active." I'll add that I'm pro-second amendment. Although I do believe there should be more discretion used with regard to who is permitted to buy weapons, this cause is really not something I get all worked up over, or give money to, for instance.

This is not the case, however, with my gun owning friends who cast any objection to their shooting their weapons into, "you’re a communist freedom hater and you're tryna take away my gun” territory.

I'm so mad at myself for feeding this beast.

Do I think shooting fish over the bridge is stupid? Do I think it’s really dumb for an adult man (mid-sixties minimum) to fire shotgun rounds into the opposite creek bank? Do I think it's sad for a little six year old boy to be allowed and encouraged to shoot his BB gun killing a hapless baby finch? Do I think you should not be firing your gun at 4 am after eight hours of drinking? Do I prefer guns be used for hunting and believe you should be hunting for food, not sport? Do I wish you'd refrain from shooting your gun until there aren't people around or to off hours, other than a Sunday afternoon?

Yes. Yes, to all of those questions. But I don't care if you own a gun. Obviously I'm not that seriously worried or why would I march down to a man with a loaded weapon and start cussing him out? Okay a lingering death-wish might enter here but I think it's more to the point that I wasn't afraid and I yelled because I was mad and it was noisy and I wanted to be heard.

I simply wish I hadn't been so rude and I promised Phil that the next time I would approach him rationally if I had a problem.

As I said, I can't unshoot that gun. Already, word is spread among nearby 'gunnies' like wild fire (and I'm here to tell you that men are some of the worst gossips I've ever encountered) that Meg is up in arms about guns, again.

Phil said to me, “Well we were just drinking some beers and though it’d be okay to fire some rounds.”

I think of the term cocksure, as relates to guns. And of the men I know who feel a need to shoot guns. “I have three in my car right now,” one said. And here’s where I go off half-cocked and begin thinking more about cocks, and maybe that some of these fish-shooting-dirt-shooting-bird-shooting gun owners feel a little small and therefore need a gun to compensate. Not me, I’ll fire my mouth off at your gun any day of the week!

Thursday, March 10, 2011

Let Us Beatifiy Nothing

You Change Nothing

Nothing is in the box.

Nothing is appealing.

Nothing can be fixed.

Nothing is ugly.

Nothing is impossible.

Nothing is on the list.

Nothing lasts forever.

Nothing is a blue food.

Nothing is perfect.


Thursday, January 13, 2011

Deadly Disease Out of Control




I think of psychosis in the same way as I think of diabetes. It's all about control. When one takes care of oneself with diet and exercise, ingesting the proper medications, and being followed by a physician schooled in the care of diabetes, one can do quite well, as I have done. Conversely, if you ignore a diagnosis of diabetes, gain lots of weight, drink lots of beer and eat a ton of high carbohydrate crap, you could well end up, blind, missing some extremities, or dead from a massive heart attack, as my dear brother did.


However, like diabetes, with the correct intervention, psychosis can be kept in check. This involves the same things, the proper cocktail of medications, excellent self care including diet, rest and activity and ongoing care by a professional trained to treat persons with such illnesses.

Some may see diabetes as stigmatizing, as I believe my brother did, he did not want to admit he had it and so he carried on as if he did not. His toes turned black. His heart strained to keep up with his cigar smoking, Fig Newton eating ways. Perhaps more deeply affecting and devastating to Bill was his long undiagnosed and untreated depression. And there you have it. Mental Illness is the ugly step child that no one wants to have or be related to; the worse the diagnosis, the more difficult for the diagnosed.

In these few years since Anna’s court ordered hospitalization, as we have entered the ‘system’ of mental health care, we’ve become familiar with the isolation and shame that a severe mental health diagnosis can mean. Friends and neighbors have pulled away (not all). The places where Anna can go for support are remote, dark and segregated places, peopled with lonely invisible individuals.

Adults with mental illness cannot be compelled to receive care anymore than people with diabetes. But the outcome of untreated psychosis can have profound consequences, which can reach beyond the individual, as they did at Virginia Tech. As they may have, with Jarred Loughner, though we don’t yet know if that is the case. For me, some of these outcomes are the result of our nation’s choice and action to cut services for people with mental illness. That’s the trouble. Americans have this ‘if it’s not broke, don’t fix it’ attitude. Out of sight; out of mind. Don’t ask; don’t tell. We forget the old and very true adage, ‘an ounce of prevention is worth a pound of cure.’

This young man who did the shootings in Arizona was not unknown to law enforcement. Respected institutions requested that he be cleared by mental health professionals before returning to school. The armed services turned him away for similar reasons. I can’t help but wonder how different the outcome of events might have been if somewhere along the line, someone said, “Oh, here is a very sick boy. Let’s make certain he gets help.” We’d do that if he had a heart attack and dropped to the ground. We’d do that if he slipped into a diabetic coma. I guess I believe that what killed in Tucson was the result of unchecked mental illness and Jarred Loughner could no more manage what was happening than my brother could stop his own heart from failing.

Many factors enter here. For instance, compulsion does not work well on adults. However, I sometimes wonder if we were to approach mental illness from a desire to demystify and de-stigmatize and to do what is within our power to integrate people into our health care and other systems if that would not make the difference for people like my daughter. So that instead of just paying lip service to the words, ‘there’s no shame’ in mental illness, we make that idea a reality.

Thursday, November 04, 2010

After the Left

Strokey's Brain is thinking about the left side, mostly the left hand. I have a touch of 'left neglect' as a residual side affect of right hemispheric brain damage. You don't lose that side of yourself, only your body. To me it felt as if all of me was scrunched on the right side of me. There begins this dialogue wherein the right says, "Hey! You're crowding us!' And the left responds, gazing at the hand, the foot, "But. that's. not. us..."

The summer before the stroke I jotted something on a post-it. I was at the cottage and I was about to leave for a Pirates game. I had been pondering the word left, I think it began with left-field and I was mining the word for all of its meaning. I'd completely forgotten this, due to the stroke, until last year when I found the post-it, with all of its left conjugations, on the bedroom floor. Of course I immediately believed I'd written it post stroke until the memory added itself back. (I was standing in the precise location where I'd jotted the thing.) I now see this as my psyche preparing itself; leaving a note for me to find later.

My politics are left, but not foreign to me. My left side gets put out with myself making demands on it. It says, "Leave me alone. Who are you?" or "Haven't you left yet?" I'm in the kitchen talking to my husband with my right hand as my left spills coffee on the floor. I run into the molding on the doorway as if I my left side was not there. I walk funny; more often if I've had some wine or when I'm very tired. I like to lie on my left side but find it difficult to get up. That side says, "That ain't me fat girl. You pick her up."

Recovery meant that my left self had to reclaim ownership and she did, no matter how odd it seemed to do so. I play the game 'Scramble" repetitively as a means to bring left hand in line. This helps with fine motor stuff and the cognitive. Even though there is some kind of betrayal here; I'm deeply fascinated. Left me--I am left--go left--left side--left bereft--bear left--bear left--bear left--left field--left alone--lefty--left left...

At times you'll find me picking up around here...wiping, collecting, scratching, and the rest. I notice that arm hanging lazily from the left side of my body...when I do, I pick it up and make good use of it.









This is Strokey (me) with my sister Jane and my cane. I was home from rehab for the weekend. You can see the sag on the right side of my face...Above the neck, the damage switches sides...so the right face wil droop with right brain damage..

Wednesday, May 06, 2009

The Marks of the Human Heart

I’m a writer. I have theories and favorites. One of my theories is that Emily Dickinson was an agoraphobic, just like me. I have a hard time thinking of agoraphobia as a phobia. I don’t fear the market place. I just prefer being at home.

I like Dickinson’s death-y poems. I’ve been reading and misunderstanding them for decades. In high school English, Mrs. Charlotte McClain, first introduced me to Emily’s work. I developed a theory about her poem, “I heard a fly buzz when I died.” At the time I was reading, Raymond Moody’s "Life after Death."

So, in a two page handwritten essay I presented my (brilliant, I thought)idea about the poem, to Mrs. McClain. I believed the poem was written about a near-death experience. Clearly the poet had clinically died, perhaps a few times. I cross-referenced the poem with Moody’s key elements of the true near death experience.

Charlotte McClain, who also taught Theatre Arts, was a frustrated thespian. And I was a character. In class we’d discuss our pages after reading them aloud. Charlotte’s review of me was scathing. She vehemently disagreed with my hypothesis and spewed against my absurd ideas, accosting me for using Moody’s trendy book to prove out a literary point. I couldn’t understand it. I wasn’t a bad actor, no spitballs here, I thought. My classmates laughed, as if earlier some of them weren’t asking me in the hallway if I would write their next essay. I left the room questioning my sensibilities and ever after my understanding of Dickinson’s work, and the work of others. I began to wonder if Moody’s book really was non-fiction. Mortality came rushing in.

I have a hard time seeing Agoraphobia as a sickness. I think it’s sicker to go to the mall. Some of us have a different worldview. I like white. I have reams of paper marked with words in boxes around the house. I don’t go out. I live in Massachusetts. My writing is not as brilliant as Emily’s I’d venture. But it is certainly as passionate and at times as hard to grasp. This is perhaps not the best combination in my case. I wrote my story, “The Death of Emily,” as a kind of raspberry to Charlotte McClain, may she rest in peace. The story evolved into a re-discovery of my dumb-kid ideas. Sometimes I’m still a dumb kid. Only now, I’m glad about it. I don’t pretend to understand Emily, the quirks we have in common, death, or the survival of it. In fact, I’m sure I understand Emily Dickinson’s work less each day. I’m glad of it. I’m learning about her in reverse. Anyway, that’s my theory.

Saturday, April 18, 2009

Shall I Compare Thee to a Shakespearian Play?

Shall I compare thee to a Shakespearian play?
You are more miraculous and less tragic,
a coarse man plucked your darling bud recklessly,
and drama's lease hath three short acts of magic.
Sometimes too mean the fate of heaven strikes,
And for such madness your countenance, dimmed;
yet from the dark chambers arise your psyche,
Not some pedestrian player but spirit determined
For thy eternal beauty remains unscathed,
here lascivious acts of villainous boys end,
you brag a heroine’s power as never played,
your truth will endure for real and not pretend.
So long as you shall breathe, and eyes can see,
So long lives drama’s beauty and angels live in thee.